• Content count

  • Joined

  • Last visited


Community Reputation

0 Neutral

About vancouverC

  • Rank

Previous Fields

  • Location vancouver, bc,canada

Contact Methods

  • ICQ 0

Profile Information

  • Interests crafting, music, playing piano
  1. I was diagnosed at age 15 (now am almost 32). No known reason, never even started puberty. Had to have growth hormones given, and then hrt from age 18 to now.
  2. Hello!!.. Primary....Roll Call!!!!!!

    Octavia, I'm glad you found this board. I've been so comforted to read other stories which paralleled my own experience. It's such a difficult thing to talk about with other people as they just cannot understand. I never went through puberty until I had the help of hrt. I was born prematurely, weighing 2lbs, 11oz. I don't know if that had anything to do with anything. But, I've always been small, and always visiting the doctors. When I was about 15 years old, I was referred to an endocrinologist who diagnosed me with premature ovarian failure. I was given growth hormones to help me achieve some height (still am short now at 4'11). After the growth hormones, and many x-rays on the wrists to show that I had achieved my height potential I was given hrt. That was about 17 or 18 years of age. I am now 31. I have been on hrt since and am on medications for osteopenia. I am building bone every year, and so I hope that I will not have to deal with osteoperosis when I am older. I never had periods at all until given the hrt. I am worried that you are on premarin alone. I believe you need to be taking some sort of progesterone to shed any uterine lining built up by taking the premarin. Otherwise, you could be at risk for developing health problems later on. As well,there are better alternatives to premarin, as it is a manufactured estrogen made from horses urine. Studies have shown that it may not be a safe hormone therapy. I am sorry that you have had such a difficult journey. Please feel free to ask questions and I look forward to seeing more of your posts. Cindy
  3. Roll call please~Now Younger POF'ers!

    Hi everyone, It's so great to find that there are other people who have gone through what I have. I was diagnosed at age 15 with pof. Didn't go through puberty at all up until then. No known cause for pof. Was given growth hormones so i could grow before they put me on hrt. Was on premarin, then conjugated estrogens. And was on provera, then prometrium. Am taking miacalcin nasal spray for prevention of osteoperosis. My bone density scans have shown improvement over the years, and I believe i will be able to come off the meds for osteo in a few years. The most amazing thing happened this feb. I am now 31 years old. I had my first period (aside from those induced by hrt) spontaneously. I was on a cycle of hrt where i didn't have flow as my dr and i didn't see the need for it. After a few years of not having one, it seems that my ovaries decided to function and bring on a period. My fsh levels were normal for the first time. They were always in the 40's before. I have an apptmt with a fertility dr referred by my endocrinologist this coming Monday july 29th. I'm so excited. But am scared too. I have a feeling that maybe my ovaries are still not going to cooperate. But I am now charting with fertility friend to see if i am indeed ovulating. My endocrinologist said she thought I might be going through a sort of "puberty" now, and we may have a window of opportunity to get pregnant. I'm really hoping so! Am now on estradot patch (1/4 of 100 patch changed every 3 days) prometrium cd14 to 27 (but am waiting to see if i ovulate before beginning it as it messes up my charting of temperatures), and am also continuing with the osteo meds. So very glad to meet you all and hope to chat more with you soon. Cindy