GETTING
THE BEST POSSIBLE HEALTH CARE
TO COPE WITH YOUR EARLY MENOPAUSE:
Working with your Doctor for the Results You Deserve!
[adapted from The Premature Menopause Book, by Kathryn Petras]
Working with your doctor -- as a partner
in your healthcare is a crucial aspect of coping with early menopause or premature ovarian
failure. Since there are so many things that are confusing, so many options open to
you in terms of treatment, and so many changes going on with you both physically and
emotionally, it's important that you develop a strong doctor-patient relationship to
ensure that you're getting the quality care you deserve.
And you have it in your
power to get just that! It's a matter of knowing what to expect from your doctor --
from the first visit on -- and knowing how best to work hand-in-hand with your
doctor. This way, you can rest assured that your questions will be answered, your
needs carefully discussed, your options clearly explained to you, and your concerns
addressed.
So following is an explanation of the different aspects of an examination, the tests
you will get, and tips on how to get the most out of your healthcare provider.
Your First Office Visit: What to Expect
When you first see a doctor as a patient to discuss your premature menopause,
youll go through both a medical history interview and a physical exam. Both are
vital components of the office visit -- each supplying different information to the
doctor. It is also likely that you will undergo certain tests if you havent had any
done recently. All of this will enable your doctor to get a picture of your current
menopausal status and to begin evaluating what form of hormone replacement therapy or
other menopausal management therapy would work best for you.
The Consultation
This is essentially the "get-acquainted" portion of your visit -- in a
number of ways. Your doctor will begin getting acquainted with you, your medical history
and your symptoms, and youll begin getting an idea of how your doctor will be
handling your menopause. Because your doctor needs to know just what youve been
experiencing and other important facts about your past health and your familys
medical history, its important to be prepared with all necessary information. . .
and extremely important to be as explicit and forthright as possible when answering
questions.
You should be prepared to tell your doctor about:
- your family medical history -- when your mother entered menopause, any diseases
that run in your family -- including breast cancer, osteoporosis, cardiovascular disease.
This will help your doctor evaluate whether or not HRT is a good choice for you. . . and
the form of HRT that may work best.
- your own medical history -- Again, this is important, especially when it comes to
prescribing HRT. If youve had a history of blood clots, for example, this will
affect the form of therapy the doctor recommends. If youre in premature menopause
due to breast cancer or other cancer treatments, your doctor will need to know the type of
treatment you had, the duration, and so forth. And if youre in surgical menopause,
again, your doctor will need to know the specifics about your disease and the treatment
you followed.
- your lifestyle -- general information on your habits, including exercise, diet,
smoking, and drinking. And be completely truthful! All too often, women feel uncomfortable
admitting to bad habits to a doctor -- for example, if they smoke, they dont want to
mention it because they know its bad. But this isnt the time to make yourself
out to be a saint! All of this information is important -- in terms of evaluating HRT
option and possible long term risks from premature menopause.. Unless youre honest,
you wont get the help you need.
- your menstrual cycle over the past few months -- frequency of periods, any
skipped periods, duration, flow, etc. As mentioned earlier, its a good idea to have
this all jotted down to be sure you dont make any mistakes.
- physical symptoms -- what symptoms youve been experiencing, how often you
get them, severity of the symptoms. And tell the doctor about them in order of importance
-- this will enable her to understand what your priorities are.
- emotional symptoms -- something that often isnt a factor in regular
gynecological exams, but one that does play a part in premature menopause. Because of the
emotional toll that premature menopause causes -- not to mention the very real mood swings
and depression brought on by depleted hormone levels, its important to discuss
emotional symptoms youve been going through. This will help the doctor determine
whether to put you on an anti-depressant or other medication or herbal supplement (like
St. Johns Wort).
- your sex life -- not the most fun topic to chat about with someone youve
only just met, but a necessary one. For example, if youve been experiencing pain
during sex, you may already be suffering from vaginal atrophy; or if youve lost
interest in sex, you may have low testosterone levels. Again, be as frank as you possibly
can.
- your future plans where pregnancy is concerned -- another topic that is
specific to women in premature menopause. If youre considering pursuing donor eggs
or other more experimental treatment for premature menopause, let your doctor know. This
may affect the type of therapy you can get -- or she may be able to tell you about
infertility clinics or reproductive endocrinologists. In fact, even if youre
considering adoption, its a good idea to mention this. She may have information on
adoption agencies or private adoption lawyers that can help you.
If possible, its an excellent idea to bring copies of any pertinent medical
records -- blood tests youve recently had (not only FSH or estrogen levels, but also
cholesterol tests, or general blood chemistries). Your doctor may want to retest you, but
even in this case, its helpful for her to have a record of your past tests.
Its tough to say exactly how long you can expect this initial consultation to
last because it can and does vary according to your specific situation, what you need to
cover and so forth. But, all in all, expect to spend from 15 minutes to as much as 30 to
40 minutes just talking. If the doctor talks to you for less than fifteen minutes or if
you havent covered the points listed above, dont hesitate to offer subjects up
yourself. . . and think about looking for a new doctor!
The Physical Exam
Once your doctor has gotten a chance to talk with you and learn about your case, its
off to the examination room, the dreaded stirrups and examination gowns.
Even though youre seeing the doctor specifically because of early or premature
menopause, the physical exam itself is pretty much the typical gynecological exam
youve been through dozens of time before.
Expect the doctor to check your weight, pulse, blood
pressure, and heart; feel your thyroid -- the gland in your throat -- to check for
swelling or abnormalities; give you a breast examination, and palpate your abdomen.
Then its on to the pelvic exam -- in which your
doctor will be checking for vaginal atrophy (a sign of low estrogen), give you a Pap
smear, and view your vaginal walls and cervix.
Unless youve had more than one recent blood
test to check your hormone levels, you will probably get a blood taken at this time as
well -- to run hormone level tests and, possibly, other blood tests such as thyroid
antigen.
Typical
Components of an Examination
Heres a list of the procedures and tests you can generally receive
when seeing a doctor -- as well as what the doctor is checking for and why these
procedures are important.
Physical Exam:
- Cardiovascular check-up (blood pressure measurement, listening to heart,
etc): check for signs of cardiovascular disease, high blood pressure, varicose veins --
which helps the doctor determine whether youre a good candidate for HRT
- Pap Smear: part of your usual gynecological exam, checks for
possible cancerous or precancerous cells in your vagina, cervix and uterine lining. If a
pap test comes back positive, your doctor will probably order other tests.
- Thyroid: checks for enlargement or lumps. If there appear to be
abnormalities, youll probably also get a thyroid blood test.
- Breasts: checks for lumps, thickening, cysts, nipple or skin
changes.
- Abdomen: checks for swelling and tenderness
- Pelvic exam: checks for cancer of the vulva, size and condition
of your reproductive organs; strength of your pelvic muscles, uterine cancer signs;
vaginal dryness and atrophy, uterine or bladder prolapse
Blood tests:
Blood tests are done to determine the levels of different hormones you are
producing (which is used to diagnose menopause), and to measure other components such as
cholesterol and thyroid hormone. Most common is testing of:
- Follicle Stimulating Hormone (FSH): usually drawn on the first,
second or third day of your cycle; usually tested for at least two successive months; high
FSH (over 30) is considered a signal of menopause or ovarian failure
- Estradiol: also usually tested more than once. Low levels (less
than 36) is usually considered a sign of menopause or ovarian failure
Depending on your symptoms and health history, the doctor may also check your:
- Testosterone: typically measured if youre complaining of
symptoms such as very low libido, fatigue, etc. Levels less than 30 nanograms/ml typically
considered low.
- Progesterone: Levels greater that 5 milligrams/ml on day 20 of
your cycle indicate that you are still ovulating.
- Luteinizing Hormone (LH): high LH to FSH levels can signal
polycystic ovarian disease (PCOD) -- which can cause stopped periods without menopause.
- Prolactin: often measured if you have stopped having periods,
but arent experiencing menopausal symptoms -- and/or if your FSH and estradiol
levels are normal.
- Lipid profile (blood cholesterol and triglyceride levels):
measures your LDL and HDL cholesterol as well as your triglycerides. Given to determine
your cardiovascular risk -- which often increases with low estrogen levels. Often if you
have high levels before going on HRT, your doctor will want to check it a few months after
taking HRT, to determine if the HRT has had a positive impact.
- Thyroid: measures the levels of thyroxine (T4) and T3; often
tested because premature ovarian failure is often linked with autoimmune disorders and
because many thyroid disease symptoms mimic menopausal ones
(If you havent had a recent physical or blood chemistry test, your doctor may
also test your blood sugar levels, liver function, and blood count -- all to help
determine your overall health and condition.)
Special tests given for specific circumstances (which generally
arent given immediately, but may be scheduled for a later visit):
- Bone mineral density test (BMD): checks for signs of
osteoporosis or osteopenia.
- Vaginal sonogram (also called a pelvic ultrasound): measures the
thickness of your uterine lining, shows if you have uterine or ovarian cysts, endometrial
hyperplasia, fibroid tumors, uterine or ovarian cancer, sometimes even endometriosis.
Typically given if you have unexplained or excessive bleeding -- especially if you are on
HRT.
- Endometrial Biopsy: small scraping of tissue taken from your
uterine lining; typically given if you have unexplained bleeding and if your sonogram
showed possible abnormalities. |
Follow-Up Visits:
How Often, When and Why
As youd expect, youll go back to see your doctor once the results from your
blood tests are in. At this point, you and your doctor will discuss the results and come
up with a course of action. Usually you will be given a prescription for HRT and begin
taking it immediately. You may also get sent for a bone mineral density test, since
premature menopause puts you at such a high risk for osteoporosis.
Your doctor probably will recommend that you schedule a follow-up visit in two to three
months to see how the HRT is working. This gives your body time to adjust to the hormones,
and allows you to see if your symptoms subside and if you have any difficulty with the
HRT. Again, its a good idea to be prepared when you go in for the follow-up, armed
with information about how youve adjusted to the HRT. Be prepared to explain when
and if you are bleeding, any symptoms or side effects youve noticed, and the like.
And dont ignore emotional symptoms. As mentioned in Chapter XX, some women
experience PMS-like symptoms from HRT, including depression and moodiness. Its
important for you to let your doctor know what is happening to you, so she can evaluate
your treatment. If the HRT doesnt seem to be doing its job, you may go through
another blood test to see where your hormone levels are and try another form, until you
end up with a therapy that works well for you. Often your doctor will recommend that,
during your first year on HRT, you go in for follow-up exams every three months.
Your doctor may suggest that you get your bone density checked after a few months of
taking HRT if you showed bone loss in your first scan. This will show how well the HRT is
working in combating osteoporosis and signal if you need any further intervention, such as
increasing your calcium intake or even taking Fosomax or another bone-builder.
Usually, once it appears that you have adjusted to HRT, your doctor will tell you to
come in for a check up every six months. You should have a pelvic exam, a breast exam and
any blood or urine tests necessary depending upon your symptoms -- and once a year, you
should have a Pap test.
When Should You Call Your Doctor In Between Visits?
While you may have no troubles at adjusting to HRT at all and will only see your
doctor during appointments, there are certain times when you should always call your
doctor to check in and possibly arrange an interim check-up. These are:
- you are on HRT, have an intact uterus and experience any unusual bleeding --
including extremely heavy bleeding, bleeding when it isnt expected (after six months
of continuous HRT, for example), breakthrough bleeding, etc. This may signal fibroids,
endometriosis, polyps or something more serious like endometrial hyperplasia or uterine
cancer. In this case, your doctor should order a pelvic ultrasound and/or an endometrial
biopsy.
- you notice changes in your symptoms -- perhaps you had stopped getting hot
flashes and are getting them again; are noticing a change in your periods or are
experiencing strong cramping. Your doctor needs to know about these changes and may want
to change your HRT.
- you develop uncomfortable side effects from HRT -- such as migraines, allergic
reactions, pains in your legs, etc.
Finally, if you have any questions at all -- about treatment options, new prescriptions
that have been introduced and that interest you, minor side effects, anything that affects
your quality of life -- you should feel free to call your doctor and ask. If youre
with the right doctor, you should be secure in the knowledge that she will answer your
questions and take interest in your menopause management.
The 10 Rules of Being a Good Patient
Having a good doctor-patient relationship is a two-way street. To get the best care
possible, you have to be a good patient.
Being a good patient doesnt mean accepting the doctors word blindly or
staying completely quiet throughout an examination. It does mean being involved,
interested and informed. So here are ten simple rules that will help you get
the care you deserve.
1) Be prepared. The old Boy Scout motto applies just as well to medical
patients. When you see your doctor for a regular appointment, call with a question, or
come in for a special problem, you should always be ready to explain exactly what your
complaints are, what symptoms youve been having, and so on. As Ive mentioned
before, its often a good idea to keep notes on symptoms, or jot down questions you
have. This way, when you speak to your doctor, youll have the pertinent information
at hand. Its also helpful to list your complaints or questions in order of
importance -- so youll be sure to get the most important points covered if you run
out of time.
2) Be organized. When you call for appointments, let the receptionist
know why you need to see the doctor -- and be as specific as possible. This will help her
schedule enough time for you. And be sure you know what you need to bring with you for
insurance purposes
3) Be prompt. Dont show up late for appointments. It sounds simple,
but many people do this. . . and it doesnt make for the best doctor-patient
relationship! If youre worried that youll be stuck reading magazines in the
waiting room for a long time, call before your appointment and ask the receptionist if the
doctor is running behind schedule -- and if you should arrive later.
4) Just as you expect your doctor to be professional yet friendly, be the same.
A good doctor-patient relationship is a professional one -- so you should be professional
yourself. Dont overdo the small talk, little niceties and jokes. A little of this
goes a long way. Yes, its good to feel at ease and to chat a bit. But you dont
want to waste the doctors time on subjects that dont relate to your medical
situation, nor do you want to detract from the real business of your appointment. . . .
your health.
5) Dont underplay any symptoms or physical complaints you may have. All
too often, when youre sitting in a doctors office, you get an attack of the
"its not really that bad" syndrome -- and either dont mention
problems youve been having or mention them as an afterthought, as if its
really not a big deal. Well, when it comes to premature menopause -- or anything about
your health, actually -- it is a big deal! Some symptoms can mean youre adjusting
poorly to HRT, or, worse, that youve developed complications, like fibroids, or even
cancer. Your doctor wont be able to help you if you dont clearly and honestly
present any physical complaints to her. Do her -- and you -- a favor by speaking up. A
confident patient who is forthright about her problems gets the best care.
6) Ask questions. This is one of the toughest areas for many women. . .
including me. While Im a forthright person in general, put me in a doctors
office and suddenly I find myself keeping my mouth shut, listening, and nodding my head --
even if I have a million questions. But its important to ask questions of your
doctor -- questions about treatments, prescriptions, tests, and so on. Again, being a good
patient means keeping yourself informed and understanding what is going on in your body.
If you dont ask questions, you wont be able to get a clear picture of your
medical situation.
7) In a similar vein, be sure you understand the doctors answers -- and
dont be frightened to ask for further explanations. Just because your doctor
thinks shes answered your questions doesnt necessarily mean she has where
youre concerned. If your doctor explains something to you, but youre still
unclear about it, simply say so -- and ask for further explanation at that time.
Dont go home and wonder -- or call later. Asking follow-up questions at the right
time saves time for both you and the doctor.
8) If youre confused, ask for information in plain English, not
medical-ese. Often a doctor will tell you about procedures or treatments using
technical language. . . and you have only the vaguest idea of what shes talking
about. Speak up! Ask for a translation in simple, laypersons terms. If you
dont understand what is being said, you cant make an educated decision. . .
which, in the long run, wont help the doctor or you.
9) Before you leave, be sure you understand the whys, hows and possible side
effects of any tests or medication the doctor recommends. Again, its a
matter of speaking up and asking questions. Before you leave your doctors office,
before you fill that prescription or schedule a test, make sure you know what to expect,
what the test entails and why its being recommended -- or what the prescription is
for, why you need it, and whether you can expect any side effects. This way youll
know what youre in for -- and wont need to call the doctor later with
questions.
10) Finally, if youre dissatisfied with the care youre getting, speak
up! Your doctor wont know that you have a problem with her care unless you
point it out. So let her know....diplomatically. Be clear, honest, and explicit. Then, if
the problem isnt rectified, start looking for a new doctor!
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